German Society for Angioedema Research |
The
German Society for Angioedema Research (GSAR) is an association
of medical doctors and scientists who are engaged in angioedema
research. The society was established in Mainz in 1996. The GSAR
is mainly dealing with hereditary angioedema due to C1 esterase
inhibitor deficiency and other types of hereditary angioedema,
but also with angioedema that occurs as an adverse effect of
drugs; it also focuses on so-called idiopathic angioedema and
other immunological and non-immunological types of the disease.
The
aims of the society are:
·
Advancement of clinical and scientific research into angioedema.
·
Communication of information to medical doctors and the public on
the various types of angioedema, especially hereditary angioedema,
in order to prevent fatalities due to asphyxiation as a result of
laryngeal edema.
·
Setting-up of guidelines for diagnosis, monitoring and treatment
of patients and the compilation of data on the epidemiology of
angioedema in conjunction with corresponding specialist societies
in other countries.
·
Representation of the interests of afflicted patients and their
physicians to health organizations and authorities, insurance
companies, as well as to public social institutions.
·
Counselling of physicians treating patients suffering from
angioedema. Establishment of a data base with information on the
various forms of angioedema, including the rare types. This data
collection also contains information on rare causes of acquired
angioedema.